Have a seat, relax, and enjoy some tea time conversation with me! God still does Miracles- I can do ALL things through Christ who STRENGTHENS ME! Phil. 4:13
Monday, March 11, 2013
Motivation March: My Story
It's that time of year again. Brain Awareness week. Hands down one of the most important weeks of the year for me. I gear up a prepare myself for this week every year from January and all through the week of Brain Awareness.
This is the week that I get to give personal attention to my brain disorder. It's the week that I can tell my story without judgement.
Most of the people that have been recently reading my blog don't know about my ACC So- for those of you that do, get ready for some repetition.
ACC is a brain disorder actually called "Agenesis of the Corpus Callosum" It means that a person is born with their corpus callosum completely or partially missing. ACC touches all parts of the ACCers life. Socially, physically, mentally, emotionally. Some with ACC can't walk or talk, some live in assisted living... while their are others that try to live as normally as possible.
Along with ACC there can be other health problems... ACC Doesn't get better or worse, it just tends to manifest itself as the ACCer gets older.
People with ACC are often misunderstood. On a personal level- I'm often called a drama queen, told that I'm too hard on myself, that I'm negative, or mean. Anyone that truly knows me knows I highly dislike drama unless it's in a novel or movie. I'm ONLY hard on myself in extremely stressful situations when I have no idea what I'm doing. I'm also not a negative person at all and I'm not mean. I am brutally honest though.
In the past I've had severe anxiety in new situations but with all the new situations I've had in the last year I'm almost an old pro at them now. I've grown and God has helped me reach a new point. It's nice.
I've scattered Facts around this blog post but stick with me... I'm going to tell you a story.
Once upon a time in the year 1985 a baby girl was born, it was winter time and it was snowing. It was around lunch time when this little (or not so little) girl was born. She was 10 pounds, 14 ounces and the apple of her parents eyes. Suddenly the baby was put aside as the mother passed out and nearly died. The father named the little girl who was to be called Lynnae Yancy... but wait... the birth certificate read Lynnea Yancy. Finally the baby's mother was stable and the family was whole. As time went on the parents noticed their little girl was crawling backward, but not forward, then she learned to walk later than she should have. The little girls foot was turning in and it worried the parents. Then it came time to learn to tie her shoes, after a long time of trying to teach her the parents decided to use the special needs technique and taught her that. Time went on and the parents who had both worked with those with special needs decided to try therapy on their daughter and were able to get her to straighten her foot when she walked.
This little girl was in school now, and getting bullied as early as kindergarten. Her parent's decided in the 2nd grade that it was time she switch schools. They tried to get her tested for special needs and the school system wouldn't do it. School went on and the young girl barely passed her classes, sometimes she didn't, no matter how hard she tried. Then when she was a sophomore her father who had cancer for 7 months passed away. She was getting bullied worse then ever. Receiving messages online, the cyber bullying was the worst. She begged her mother to put her on home school and she did that for a year and a half, then went back to public school to graduate. She took a year off and then went to college.
Freshman year of college this young womans life changed. She'd had 2 car accidents in a year, and had daily migraines for mos of her life. Her mother, who was now very concerned decided it was time to take her to a neurologist. She was diagnosed with ACC. For months she tried to hide it. That was stressful because she'd never been good at hiding who she was. Finally 6 months after she was diagnosed the truth came out and she was called to share her story. Each day became a struggle, because the bullying didn't stop after high school. No one understood her. She still didn't fit in, even if she was around fellow Christians. The difference was she'd found a group of friends that PRETENDED that she fit in...and just to get by, that was enough.
This girl is me.
Every day has been a struggle. I've had daily migraines most of my life, as stated earlier. I've never taken tests well, and I'm horrible with social cues. I don't do well going to any type of parties... dinner parties or dinner at friends houses are the worst. I always end up doing something dumb and embarrassing something that makes people look at me like I'm the biggest idiot they've ever met.
I've got several very patient people in my life that make it all worth it.
I'm not saying ANY of this to complain. But I wanted to paint a picture. My life really is amazing. I've got the best mother in the world. And the few friends that I'm close to are the truest. I've found my niche among a group of fellow bookworms and a group of crafty people. My fathers family keep me involved in their lives. And with my ACC... I've met some of THE BEST people I've ever met and may ever meet! I've been able to help people in a way that I've never imagined and well... I've got super powers ;)
My super power is that I can do research, homework, read, anything while watching movies...in fact I can't get anything done unless I'm watching a movie or talking to someone WHILE I'm doing it. I've met people that only wish they could multitask like that! haha My life is amazing... but there is still a story to tell and I wont stop until EVERYONE that I know knows about Agenesis of The Corpus Callosum, and until they tell others about it. Not for me but for every ACCer I know. Ultimately I want people to know that bullying the differently-abled is NOT the way to be. Making them feel like less so you can feel like more is just NOT right and every differently-abled person has ME fighting in their corner! BECAUSE I CAN!
So if you know an ACCer or anyone else who has a differability... stand up for them, love them, treat them with respect, the kind of respect that we ALL want.
This is my story and I'm spreading it :)
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